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Driven by purpose.

Infusion Access Foundation works every day to make sure people can get treatment when they need it, so they don’t get sicker, and above all, so they can continue living their best lives.

Fighting for progress.

Living with the physical, emotional, and economic strain of disease is overwhelming. It’s easy to feel hopeless—until you get the right medication and it gets you back to feeling and living the way you want to.

Everyone deserves access to the right treatment that protects their health. Securing that access isn’t always going to be easy. We’re going to have to fight for it, but knowing you’re with us means everything.

The journey to achieve balance.

With work, family, friends, money, health, and self-care, leading a “normal” modern life is already a balancing act. On top of all that, your disease throws you so much more to deal with—nutrition, medication, treatments, comorbidities, insurance coverage, unplanned time off, out-of-pocket costs, and the roller coaster of emotional ups and downs. All of this stacks up and topples over, especially during a flare.

Our Infusion Champions are our heroes: patients like you. They’re working hard to grasp, shift, organize, hold, and ultimately carry all the shapes along the disease management journey. Finding and maintaining balance is how you can break through and live better. We’ve designed the Infusion Access Foundation community around this hopeful journey to balance.

1 – New to This: Newly Diagnosed

A chronic disease diagnosis is life-changing. Trying to balance new specialists, medications, and treatments can feel like you are wobbling on a pile of unfamiliar shapes. Infusion Access Foundation is a community of people who are balancing similar shapes and can help you figure out how to do the same.

2 – Teeter-Totter: Sub-Optimal Management

When your shapes are unbalanced, disease flares are ready to strike. Infusion Access Foundation provides resources to help you recognize and navigate imbalances. You can also join in on advocacy efforts that help protect your access to treatment when you need it.

3 – Leveling Out: Restorative Management

Recovering from a flare is exhausting. It takes time to heal from physical and emotional pain, regain balance, and restore your sense of wellness. Infusion Access Foundation is here for you with community support and educational resources to get you back in balance. Lean on us to help you through!

4 – Balance Beaming: Effective Management

With the right treatment and support system, you can find balance again. Although there might be setbacks, we’re here to break-down barriers and celebrate your wins. Share your voice with the Infusion Access Foundation community as we stand together for everyone’s access to treatment.

What to expect from us.

We are a dedicated safe space for people living through the ups, downs, and in-betweens of complex chronic disease.

Supportive

We have a library of community resources to empower patient voices and share their stories with the world.

Compassionate

We embrace the humanity of all patient experiences, from the joy of regaining hand function to the grief of missing life events due to disease.

Strong

We stand up against the great adversity and challenges patients face in accessing provider-administered therapies, so they don’t have to.

Dedicated

You can count on us for active advocacy, community support and educational materials 24/7/365.

Here for you, ready for anything.

Alicia Barron, LGSW

Executive Director

Alicia Barron, LGSW has more than 20 years of experience working with people affected by chronic illnesses and the healthcare providers who treat them. She cares deeply about the ways in which living with chronic illness impacts a patient in all areas of their life – from physical healthcare to psychosocial health.

Knowing that better outcomes for patients require teamwork, Alicia builds relationships with everyone involved in patient care – healthcare providers, pharmaceutical companies, other patient organizations, elected officials, and of course, patients themselves.

Kindyl Boyer, MPP

Director, Advocacy

Kindyl works to multiply IAF’s advocacy efforts at the state and federal levels, serving on numerous coalitions on behalf of the organization. She also works to create and expand community educational materials offered to patients of provider-administered medications.

Maggie Lynch

Project and Fundraising Manager

Maggie Lynch brings over five years of nonprofit experience to her role as Project and Fundraising Manager at the Infusion Access Foundation. With a background in fundraising, communications, project management, and event planning, Maggie has consistently demonstrated her dedication to making a positive impact.

Coming from a family of doctors, Maggie has always been intrigued by medical stories, which has fueled her passion for advocacy. She is a strong advocate for empowering the patient voice, striving to ensure that patients' experiences and needs are heard and addressed.

In her current role, Maggie leverages her expertise to drive impactful projects and secure vital funding, furthering the foundation's mission to support and amplify the voices of patients everywhere.

Sam Miller

Advocacy Associate

Sam Miller, MPA is the Advocacy Associate at the Infusion Access Foundation, where he works to ensure positive outcomes for infusion patients. A graduate of Indiana University’s O’Neill School of Public and Environmental Affairs, Sam has experience in grassroots advocacy, Congressional lobbying, and policy development from his previous role as the State and Federal Advocacy Manager with the American Orthotic and Prosthetic Association.

Grady Stewart

Digital Content Specialist

Grady is the Digital Content Specialist for the Infusion Access Foundation (IAF), where he guides the communications and content strategy for the organization internally and externally. He works to amplify the advocacy efforts of IAF by creating multimedia resources to support, educate, and uplift the patient community.

He brings his personal experience as a patient and his professional skills in writing, design, video, and creative strategy together to positively impact healthcare stakeholders and patients and to advance the mission of IAF.

His experiences in healthcare and communications motivate him to fight to ensure that all patients receive the care and support they deserve. He looks forward to helping shape the future of healthcare anddeveloping his skills along the way.

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Driven by purpose.

Fighting for progress.

The journey to achieve balance.

1 – New to This: Newly Diagnosed

2 – Teeter-Totter: Sub-Optimal Management

3 – Leveling Out: Restorative Management

4 – Balance Beaming: Effective Management

What to expect from us.

Supportive

Compassionate

Strong

Dedicated

Here for you, ready for anything.

Alicia Barron, LGSW

Kindyl Boyer, MPP

Maggie Lynch

Sam Miller

Grady Stewart

Board members

Bryan Johnson

Charlie Schadewald

Brian Nyquist

Marissa Shackleton

Advisors

Kaitey Morgan, RN, BSN, CRNI

Chris Counts

Stephanie Santos

Your support means the world to us.