Infusion Access Foundation
News & Updates

Closing the Gap: Why Infusion Patients Need Federal Step Therapy Reform
When it comes to health insurance reform, we don’t need Congress to reinvent the wheel. We need Congress to use some common sense to build on what’s already working and fix what isn’t. And on that front, my home state of Virginia's General Assembly has been showing...
What You Can Expect at Champions’ Weekend
Thinking about applying for Champions Weekend but want to know what it's really like? We're pulling back the curtain to give you a sneak peek into our patient retreat in Austin, TX. Champions' Weekend is more than just a conference; it's a supportive and...
The Champions Weekend Application Process
Every year, Champions Weekend brings together an incredible cohort of patient advocates from across the country to connect, train, and amplify their voices for better healthcare access. We often get asked: “How does the selection process actually work?” Because...
5 Reasons to Apply for Champions Weekend
Are you a patient driven to make a tangible difference in healthcare? Do you possess a unique story that deserves to be heard, and a desire to learn how to shape policy? If so, Champions Weekend offers a pivotal opportunity to transform your passion into powerful...
Policy Infusion: Breaking Down the Latest Health Care Movement in Congress
Anyone following health care policy may have noticed a rush of activity on Capitol Hill. Congressional committees have recently advanced proposals involving prior authorization, pharmacy benefit managers, and health care price transparency. Why are so many bills...
Toast, NICA, and You: Celebrating the Voices Fighting for Your Infusion Access
If you live with a chronic illness, rare disease, or autoimmune condition, you already know that managing your health is a full-time job. What you might *not* know is that there is a massive network of healthcare heroes, advocates, and policymakers working tirelessly...
Policy Infusion: Bringing Patient Stories to Capitol Hill
This week, the Infusion Access Foundation will bring our community’s voices directly to Capitol Hill for Hill Day 2026. Hill Day is one of the most meaningful parts of our advocacy work because it brings together the people most impacted by health care access barriers...
The 20-Year Diagnosis: Stasha’s Battle with Rheumatoid Arthritis
https://youtu.be/CdncN9Io9Yc For nearly twenty years, Stasha lived with mysterious swelling, pain, and stiffness that began in her teens. Because she lacked consistent insurance and faced a system that refused to approve testing for her "temporary" symptoms, she was...
Jawan: A Hidradenitis Suppurativa Journey from Silent Suffering to Fearless Advocacy
https://youtu.be/mJEh7_L6gGU Jawan’s battle with Hidradenitis Suppurativa (HS) began when he was just seven years old. For 13 years, he lived without a diagnosis, while doctors and family downplayed his agonizing symptoms as mere "boils." It wasn't until age 20, while...
Sheldon: How a Law Graduate Took on Insurance Greed to Treat Small Fiber Neuropathy
https://youtu.be/oJaEootYKVA In the summer of 2023, Sheldon was at the peak of her career and social life, balancing a full-time job with rigorous study for the Bar exam. When she first felt numbness and tingling, she dismissed it as stress. But soon after the exam,...
Sarah: How Multiple Sclerosis Taught Me to Find Freedom in Stillness and Advocacy
https://youtu.be/0UFQlpm5_iM Before her diagnosis, Sarah was always in motion—a ballet dancer, tennis player, and climber who believed that hard work could overcome any physical obstacle. That illusion was stripped away in a matter of days in 2011. After experiencing...
Nya’s Story: From Pediatric Lupus Patient to Future Pediatric Rheumatologist
https://youtu.be/rJUnwjWUNxU When Nya was diagnosed with Lupus at just 12 years old, her world came to a sudden, painful halt. While her peers were attending football games and school dances, Nya was spending her weekends in hospital beds, traveling four hours each...
The Seronegative Struggle: Mahsa’s Journey with Mikulicz Disease & IgG4-RD
https://youtu.be/AVQ_d6-Tda0 From infancy, Mahsa’s life was defined by chronic infections, fatigue, and pain, yet her bloodwork always appeared normal. For over three decades, her symptoms were dismissed as stress or allergies, even as she suffered undiagnosed...
Julie: The 7-Month Insurance Battle for Thyroid Eye Disease Treatment That Put My Sight at Risk
https://youtu.be/a5czC4HumUI For over 20 years, Julie lived a high-energy life defined by half-marathons, skiing, and travel. But in 2018, the reflection in the mirror began to change. What started as subtle shifts in her facial features and slight fatigue was...
From 12-Year-Old Patient to Empowered Advocate: D’andre’s Crohn’s and HS Journey
https://youtu.be/IcR-T420j1g D'andre’s chronic illness journey began in 1999 when, at just 12 years old, she transformed from a healthy child into a malnourished adolescent in just five months. Diagnosed with Crohn’s, she was told life would never be the same. Beyond...
The Rare of the Rare: Betty on Living with Seronegative Myasthenia Gravis
https://youtu.be/O30OKBJxOg8 Betty was once the "anchor" of her large Nigerian American family, a firstborn of 17 siblings who moved through the world with quiet confidence. As a dedicated educator and facilitator, her voice was her power—until the summer of 2011,...
Amy’s Journey: Fighting Step Therapy for Chronic Gout and Rheumatoid Arthritis
https://youtu.be/jS7uoyQn-yc For most of her life, Amy was a "busy mom on the go," keeping up with the chaotic schedules of her four children. But in her 40s, her body began to fail her. What started as unexplainable aches soon turned into debilitating joint swelling...
Policy Infusion: Why Lawmakers Are Paying Attention to Vertical Integration in Healthcare
If you have ever tried to figure out why a prescription drug costs what it does, why one pharmacy is preferred over another, or why your insurance plan steers you toward a certain site of care, you have already brushed up against one of the most complicated issues in...
Policy Infusion: An Update on TrumpRx
A few weeks ago, we shared an overview of TrumpRx (available here). Since then, the program has grown from 43 drugs to over 61, with companies like AbbVie and Genentech joining the site. AbbVie will sell its arthritis drug Humira, which is also used to treat Crohn’s...
The Caregiver & The Survivor: Ashlee and Michael Battle with Rare Cancer
Michael Cramer’s journey is a cinematic arc of elite athleticism and unimaginable medical hurdles. Born in Paris and raised in Miami Beach, Michael was an Olympic Development windsurfer when his life took a devastating turn in 2020. Diagnosed with Hepatosplenic T-cell...



















