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Explore our current advocacy initiatives to learn more about the topic, send a letter to your lawmakers, or discover if your state has passed legislation.

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Advocacy
Patient Advocacy 101
What is patient advocacy?
Patient advocacy is speaking up for patients, whether that patient is a friend, a loved one, or yourself. It’s working to change the current system to better care for those managing a chronic illness. Patient advocacy can take many forms, such as sharing a social media post, writing a letter to your legislator, telling your story to a friend, or meeting with your lawmakers.
How do we advocate for patients?
Managing a chronic illness is a full time job, and being a patient advocate on top of that can feel like too much. That’s why the Infusion Access Foundation is here to help. We listen to our community’s concerns, identify political solutions, and communicate those solutions to decisionmakers. We do this through grassroots advocacy, story sharing, and communicating directly with state legislators and Congress.
Why should we advocate together?
State and federal decisionmakers can only help if they know what you are going through. Story sharing, letter writing, providing testimony, and attending Hill Days to meet with lawmakers will help legislators understand the struggles associated with managing a chronic illness in this country. We know engaging in these activities can be intimidating, but the Infusion Access Foundation is here for you every step of the way.
Resources
Advocacy
Our Current Initiatives
340B Drug Pricing Program
The 340B Drug Pricing Program was created to help certain healthcare organizations stretch their limited resources to provide more services and reach more patients. Unfortunately, the 340B program has become a profit driver for hospitals and other entities that markup discounted drugs to boost profits, while patients struggle to afford care.

Alternative Funding Programs
Alternative Funding Programs (AFPs) are companies that health plans hire to help them save money. Typically, AFPs help health plans avoid paying for their customers’ medications, including biologics and infused or injected medications used to treat chronic or rare diseases.
Step Therapy
Step therapy, or “fail first,” is when an insurance company requires a patient to try and fail a drug before taking the medication their doctor prescribed.
Copay Accumulators and Maximizers
Insurers use copay accumulators and maximizers to prevent copay assistance from counting toward a patient’s out-of-pocket expenses.
Health Disparities
Non-Medical Switching
Non-medical switching is when an insurance company disregards a doctor’s recommendation and forces a patient to change medications for reasons unrelated to health and safety.
Pharmacy Benefit Managers (PBMs)
Prescription Drug Affordability Boards (PDABs) and Upper Payment Limits (UPLs)
Some states have created Prescription Drug Affordability Boards (PDABs) to review the cost of certain prescription drugs and decide whether to set limits on how much pharmacies, infusion providers, and other entities can be reimbursed for those medications.

Share Your Story
Frustrated by insurance denials, high costs, or lack of access to care? You are not alone. Share your story with the Infusion Access Foundation Advocacy Team and hear from other patient champions.
Check out our advocacy campaigns
View our Action Center for more details.
Advocacy Updates

Why Voting Matters to the Patient Community
Election Day is Tuesday, November 3, 2026. When you live with a chronic or complex condition, healthcare policy can become personal very quickly. A new insurance requirement can affect when you receive treatment. A change in coverage can affect what you pay....

Closing the Gap: Why Infusion Patients Need Federal Step Therapy Reform
When it comes to health insurance reform, we don’t need Congress to reinvent the wheel. We need Congress to use some common sense to build on what’s already working and fix what isn’t. And on that front, my home state of Virginia's General Assembly has been showing...

5 Reasons to Apply for Champions Weekend
Are you a patient driven to make a tangible difference in healthcare? Do you possess a unique story that deserves to be heard, and a desire to learn how to shape policy? If so, Champions Weekend offers a pivotal opportunity to transform your passion into powerful...

Policy Infusion: Breaking Down the Latest Health Care Movement in Congress
Anyone following health care policy may have noticed a rush of activity on Capitol Hill. Congressional committees have recently advanced proposals involving prior authorization, pharmacy benefit managers, and health care price transparency. Why are so many bills...

Policy Infusion: Bringing Patient Stories to Capitol Hill
This week, the Infusion Access Foundation will bring our community’s voices directly to Capitol Hill for Hill Day 2026. Hill Day is one of the most meaningful parts of our advocacy work because it brings together the people most impacted by health care access barriers...
Support Our Advocacy Efforts!
Are you looking for a powerful way to champion the rights and needs of the infusion community? By partnering with us, you provide the vital resources needed to drive legislative change and remove systemic barriers to patient care. Your sponsorship directly fuels our mission to amplify patient voices and ensure life-saving treatments remain accessible and affordable for everyone. Together, we can transform the healthcare landscape and create a more equitable future for those we serve.
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