Get Empowered

Advocacy

Explore our current advocacy initiatives to learn more about the topic, send a letter to your lawmakers, or discover if your state has passed legislation.

Stay informed

Sign up for our action alerts!

We send out action alerts to you based on the state that you live in, and give you an easy way to send letters to your legislators.

Get updates

Sign up for the Policy Infusion

The Policy Infusion is our monthly newsletter that keeps you informated about what is happening in advocacy and policy as it relates to healthcare.

Advocacy

Patient Advocacy 101

What is patient advocacy?

Patient advocacy is speaking up for patients, whether that patient is a friend, a loved one, or yourself. It’s working to change the current system to better care for those managing a chronic illness. Patient advocacy can take many forms, such as sharing a social media post, writing a letter to your legislator, telling your story to a friend, or meeting with your lawmakers.

How do we advocate for patients?

Managing a chronic illness is a full time job, and being a patient advocate on top of that can feel like too much. That’s why the Infusion Access Foundation is here to help. We listen to our community’s concerns, identify political solutions, and communicate those solutions to decisionmakers. We do this through grassroots advocacy, story sharing, and communicating directly with state legislators and Congress.

Why should we advocate together?

State and federal decisionmakers can only help if they know what you are going through. Story sharing, letter writing, providing testimony, and attending Hill Days to meet with lawmakers will help legislators understand the struggles associated with managing a chronic illness in this country. We know engaging in these activities can be intimidating, but the Infusion Access Foundation is here for you every step of the way.

Advocacy

Our Current Initiatives

340B Drug Pricing Program

The 340B Drug Pricing Program was created to help certain healthcare organizations stretch their limited resources to provide more services and reach more patients. Unfortunately, the 340B program has become a profit driver for hospitals and other entities that markup discounted drugs to boost profits, while patients struggle to afford care.

Alternative Funding Programs

Alternative Funding Programs (AFPs) are companies that health plans hire to help them save money. Typically, AFPs help health plans avoid paying for their customers’ medications, including biologics and infused or injected medications used to treat chronic or rare diseases.

Step Therapy

Step therapy, or “fail first,” is when an insurance company requires a patient to try and fail a drug before taking the medication their doctor prescribed.

Copay Accumulators and Maximizers

Insurers use copay accumulators and maximizers to prevent copay assistance from counting toward a patient’s out-of-pocket expenses.

Health Disparities

People experience health care, treatment, and disease differently because of who they are and where they live.

Non-Medical Switching

Non-medical switching is when an insurance company disregards a doctor’s recommendation and forces a patient to change medications for reasons unrelated to health and safety.

Pharmacy Benefit Managers (PBMs)

PBMs serve as the “middlemen” between drug manufacturers and insurance companies. They control the list of drugs your insurance company covers each year.

Prescription Drug Affordability Boards (PDABs) and Upper Payment Limits (UPLs)

Some states have created Prescription Drug Affordability Boards (PDABs) to review the cost of certain prescription drugs and decide whether to set limits on how much pharmacies, infusion providers, and other entities can be reimbursed for those medications. 

Share Your Story

Frustrated by insurance denials, high costs, or lack of access to care? You are not alone. Share your story with the Infusion Access Foundation Advocacy Team and hear from other patient champions.

Check out our advocacy campaigns

View our Action Center for more details.

Advocacy Updates

Support Our Advocacy Efforts!

Are you looking for a powerful way to champion the rights and needs of the infusion community? By partnering with us, you provide the vital resources needed to drive legislative change and remove systemic barriers to patient care. Your sponsorship directly fuels our mission to amplify patient voices and ensure life-saving treatments remain accessible and affordable for everyone. Together, we can transform the healthcare landscape and create a more equitable future for those we serve.

Advocacy

Partners

Sign up for action alerts below

Sign up for The Policy Infusion and our other Newsletters below


Join Our Newsletter

Please complete this form to receive email updates and much more.
Contact Email  *
First Name 
Last Name 
*
You can sign up to receive email updates from topics that may interest you.
*Required Fields